A thank you video from Hasbro Children’s Hospital to all the sponsors, media partners, and donors who made the 2012 radiothon possible.

Radiothon Dollars at Work

Radiothon has helped fund these programs and equipment for Hasbro Children’s Hospital:

• ImPACT concussion baseline testing

• ECMO (extracorporeal membrane oxygenation) Used for critically ill children, ECMO takes over circulatory and breathing functions and oxygenating the blood for patients who are too sick to do so on their own.

• Pediatric bronchoscopes

• Healing Arts Program including Art While You Wait and Music on Rounds.

• Gliders to rock infants and for nursing mothers in the Tomorrow Fund Clinic

• SibLink Program, a program designed to celebrate, serve and connect brothers and sisters of children with special needs through clinical service, teaching and research

• Glass artwork for the Tomorrow Fund Clinic waiting room

• 24-hour ambulatory blood pressure machines

• Piezosurgery device

• Surgery headlights

• Haiti medical education exchange program

• TALC and TALC Camp, a program for teenagers with chronic illnesses that strives to prepare those teenagers for the transition to adulthood and independence by providing them with mentors they can relate to

• Pink Catalac/Low Rider Total Lift II

Items funded through your support of the Radiothon:

Giraffe Bed - $26,500

Incubator and Warmer in One—The Best of Both Worlds.

The Giraffe* OmniBed is a dual system bed that combines the features of a conventional incubator plus that of a radiant warmer with the touch of a button. This bed provides a reduction in stress to the newborn and provides better access for caregivers.

In both modes, the Giraffe OmniBed offers cutting-edge technology, advanced design, and excellent performance for a quality critical care environment that has everything necessary right at your fingertips.

Tobii C15 Speech Generating Device -
$8,500

Facilitates Effective Communication

The Tobii C15 is an assistive and augmentative communication device (AAC) that enables effective communication in all forms, from face-to-face communication to long distance communication.

This device is particularly helpful to those who rely on a wheelchair or are unable to get around on their own. This equipment benefits those who have limited use of their hands or other body parts perhaps due to such things as advanced ALS, cerebral palsy, or stroke.

The Tobii C15 allows for easy engagement in daily communication by way of text or symbols that produce speech. Effortless connection with others is permitted via email, text, instant messaging and chat. Web surfing, gaming and use of a wide array of typical computer software are also applications for this communication device.

Asthma Camp $10,000

(Funding provides much needed transportation for campers)

Asthma Camp

Community Asthma Programs of Hasbro Children's Hospital directs Rhode Island's only overnight camp designed specifically for children with asthma. The annual summer camp gives children the opportunity to control their asthma through education in a positive, healthy, safe and challenging atmosphere.

The camp is open to boys and girls with asthma who are between 9 and 13 years old, and is held at the Canonicus Camp and Conference Center in Exeter, Rhode Island.

The camp is designed to provide an opportunity for children with asthma to share ideas, problems and concerns about asthma. It also provides an opportunity for them to learn self-reliance and self-confidence outside the home. It provides a positive camp experience for children with asthma. Read more >>

Briell

Briell is a twin and was born six weeks early, at 5lbs, 14 oz. She and her sister spent about two weeks in the NICU at Hasbro Children’s Hosptial. She was born with a small skin tag that was torn. Tests on the healing tear revealed that Briell had a hemangioma, a benign growth tumor of the cells that line the blood vessels. While being treated for her hemangioma by Christopher Muratore, MD, it was discovered that Briell also had tethered cord, a malformation of the spinal cord. Muratore referred her to neurological surgeon Petra Klinge, MD, who also found that Briell had a lypomyelocystocele, a thick layer of subcutaneous fat at the base of her spine. During the November 2011 surgery, Klinge was able to completely de-tether her cord and address the lypomyelocystocele. Briell’s parents say she is doing fantastic now and rolling around everywhere!

Jenna

In March 2011, Jenna’s mom took her to the pediatrician three times because she was feeling sick. The pediatrician told the family it was a virus or flu each time. Finally, on March 30, 2011, Jenna’s parents took her to Hasbro Children’s Hospital where she had a CT scan and the doctors discovered she had a tumor. Doctors performed surgery two days later and diagnosed Jenna with medulloblastoma. Two weeks after her surgery, she started an intense treatment of radiation and chemotherapy, five days a week, for six weeks. Jenna has spent a total of 91 days in the hospital since last March. Jenna’s family learned through her treatment Jenna also has Li-Fraumeni syndrome, a genetic disorder that greatly increases a patient’s chances of developing cancer. Jenna went into remission in July. She still has two more inpatient chemotherapy treatments to undergo, but she has been cancer free since August. According to Douglas Harrison, MD, Jenna’s family have touched everyone around them and have maintained their sense of humor and strength!

  Tony

When Tony was born, his mother noticed that skin was missing from his knees in what looked like burns on his kneecaps. He appeared to be a in a great deal of pain and was taken to the NICU. While there, his condition worsened and he developed small blisters with missing patches of skin. Soon after, doctors diagnosed him with epidermolysis bullosa (EB), a rare group of inherited disorders that manifest as blistering or erosion of the skin and, in some cases, the epithelial lining of other organs, in response to little or no apparent trauma. Tony has undergone nine surgeries on his hands at Hasbro Children’s Hospital, all performed by plastic surgeon Richard Zienowicz, MD. Tony is creative and an inventor. He wants to develop apps for Apple, go to Harvard, and become a geneticist when he grows up!