Our specialty programs support team is available every day to respond to parents' concerns and to ensure coordination of the child's multiple services across the continuum of care.
The following programs, located in our center, assist children and families in accessing medically necessary services in the community:
The Max All Star Kids/Pediatric Palliative Care Program helps families with children who have chronic or life-threatening medical conditions. The goals are to ensure relief of pain and distressful symptoms for the child, and to offer services that enhance the comfort and quality of life for both the child and his family. The program seeks to give emotional and spiritual support, assistance in decision making and care planning, and access to community resources and services. This program is a grant-supported initiative.
Fragile X is dedicated to improving the lives of those with Fragile X syndrome, Fragile X-associated disorders, their families, and to the study and advocacy of new therapies and treatments.
Family-Centered Care Committee, The Children’s Neurodevelopment Center is committed to
the philosophy that family involvement is central to a child’s health and healing. Practitioners and staff collaborate with each other and
partner with families to promote shared decision-making and ensure
optimal outcomes for each child and family. If you have questions or would like to become involved
with the center’s parent groups and activities, please contact
our family liaison 401-444-9089.
DreamNight at the Zoo, is an exclusive evening at the zoo where children with
special health care needs such as cerebral palsy, spina bifida and
developmental conditions can enjoy the full zoo experience, along with
their families, free of charge and without concern for social stigma,
accessibility or cost.
For more information about any of the programs please call 401-444-5685.